Rett Syndrome Charity Tournament
June 14, 2025
Proudly Sponsored By
Join us in making a difference
Rett syndrome is a neurodevelopmental disorder that affects girls almost exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability.​
The course of Rett syndrome, including the age of onset and the severity of symptoms, varies from child to child. Before the symptoms begin, however, the child generally appears to grow and develop normally, although there are often subtle abnormalities even in early infancy, such as loss of muscle tone (hypotonia), difficulty feeding, and jerkiness in limb movements. Then, gradually, mental and physical symptoms appear. As the syndrome progresses, the child loses purposeful use of her hands and the ability to speak. Other early symptoms may include problems crawling or walking and diminished eye contact. The loss of functional use of the hands is followed by compulsive hand movements such as wringing and washing. The onset of this period of regression is sometimes sudden.
Event Details
Going into its 9th event the Rett Syndrome Charity Tournament has actively fundraised over $200,000. This year’s golf event will be held on Saturday June 14, 2025 at Redtail Landing Golf Club, Nisku, Alberta. The event will consist of up to 120 participants.
Golf Details
The tournament will consist of four person teams (all ages) participating in a scramble format. This non-competitive event will feature prize holes, allowing participants to enjoy a leisurely round of golf while also having the opportunity to win various prizes. Interested individuals can register as a team of four or as individuals. The registration fee of $200 per player includes a welcome package, 18 holes of golf, a shared golf cart, lunch, as well as access to raffles, auctions, and other exciting prizes.
Sponsorships
Your contribution can make a meaningful difference in the lives of individuals and families affected by Rett Syndrome. By donating to our charity tournament, you are helping to fund critical research, provide much-needed support services, and raise awareness about this rare neurological disorder. Every dollar makes a difference and brings us one step closer to finding a cure. For more details on sponsorship opportunities see the sponsor letter. Thank you for your support.
Title and Welcome Package
Meal Sponsorship
Food Hole Sponsorship
Putting Competition Sponsorship
Closest to the Pin
Longest Putt
Long Drive
Putting Competition
Closest to the Pin
Hole in One
Drink Hole
Longest Putt
Hole in One
Hole Sponsor
Closest to the Line
Longest Putt
Hole Sponsor
Drink Hole
Hole Sponsor
Hole Sponsor
Hole Sponsor
Hole Sponsor
Contact Us
Feel free to reach out to us with any questions about the Rett Syndrome Charity Tournament or the upcoming golf event. We're here to help and provide information about how you can get involved and make a difference in the lives of those affected by Rett Syndrome.